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Important Announcements and New Additions

Posted on October 7, 2005:
I received this email from a Lyme support group:

LYME HEARINGS IN MASSACHUSETTS

The Joint Massachusetts Legislative Committee on Public Health has announced that there will be a Public Hearing on Lyme Disease beginning 10:00 am, Wednesday, October 12th in Hearing Room A-1 at the Massachusetts State House, Beacon Hill, Boston.

The program will begin with testimony from an expert panel consisting of:

Brian Fallon, MD, MPH Columbia University College of Physicians and Surgeons;Director, Lyme Disease Research Program, NY State Psychiatric Institute; Principle Investigator for N.I.H. Chronic Lyme Retreatment Study Daniel Cameron, MD, MPH Principle Investigator,N.I.H. Lyme Double-Blind Randomized Placebo-Controlled Study; Board of Directors, ILADS; Private Practice, Mt. Kisco, New York Charles Ray Jones MD Private Practice: Pediatric and Adolescent Lyme Disease, New Haven Connecticut Patricia V. Smith President, (national) Lyme Disease Association, Inc.; Vice President, Political Affairs, ILADS (International Lyme & Associated Diseases Society)

The general public will then be invited to testify. Lyme patients from everywhere are welcome; however,Massachusetts residents will be given preference regarding testimony. Although legislators have asked the public to testify from the heart written notes and/or cards will be permitted. Time will be limited to 5 minutes (IMPORTANT, one to two typed pages is about 5 speaking minutes; there is, however, no limit to the written testimony that you may choose to submit to the Public Health Committee). Bring yourwritten testimony to the hearing, and please forward a copy of your statement by October 1 to:

E-Mail: MassLyme@aol.com

FAX: (508) 563-7780

Snail-Mail: Massachusetts Lyme Disease Coalition
P.O. Box 1916

Mashpee, MA 02649

TRANSPORTATION: Early on Wednesday October 12th we
expectto have busesleaving from 4 locations

(1)Cape Cod: Nancy (508) 362-3189nbwood@comcast.net

(2) North Shore: Kay B10G7@comcast.net

(3) Fall River Janice: (508) 636-9000 TheWestporter@aol.com

(4) Western Massachusetts. Carla (413) 569-5800 Rhausta@Mail.com

A Large Turnout is as important as the quality andquantity of Personal Testimonies. Please bring your children, spouses and other family members. Drs. Jones, Fallon & Cameron and Pat Smith are all traveling a long distance and sacrificing much to help us make this into a successful event. This is THE opportunity that we have been waiting years for! The Massachusetts Legislature has never, EVER held hearings on Lyme disease at the State House in the past; let's not be faint of heart but, rather, let's all 'seize this moment!' with our cogent and coherent testimonies and our OVERWHELMING attendance!We have, at this event, the opportunity to begin changing conditions for Lyme patients here in Massachusetts and nationwide.

I hope to see you ALL at 10 AM sharp on Wednesday October 12th at the Massachusetts State House (Hearing Room A-1)! Note: For those coming in private cars, parking is underground.

Sincerely,
John Coughlan
Director
Massachusetts Lyme Disease Coalition

Ph: (508) 563-7033

*NOTE: there is a possibility that a physician from the "conservative" Steere/Klempner group may be added to the program.

Posted on September 1, 2005:
I am adding a new page to my site that will contain recent news articles on Lyme Disease. This page will be updated on a daily-weekly basis, so please check back.

Posted on August 17, 2005:
I'm in the process of redoing the entire website! I hope you enjoy the new look. All the links have been checked to make sure they work, and everything should be up and running soon. A new private forum has also been added due to my other forum being hacked. Click here to register to the new forum. Email me with any questions, comments, of if you find broken links, thanks!

Posted on February 14, 2005:
There is an NJCFSA Spring Conference at Robert Wood Johnson University Hospital in New Brunswick, NJ. Several people will be spreaking, including Dr. William Reeves from the CDC, Dr. Julian Stewart on Pediatric Ortho Intolerance in CFS, and Barbara Comerford on CFS and Disability Law and Rosemary Underhill on CFS and prevalence in families. It will be help Saturday, April 30, 2005. For more information, pleace visit www.njcfsa.org

Beth Warren, Youth Trustee of New Jersey Chronic Fatigue Syndrome Association (NJCFSA) is attending the American Medical Student Association (AMSA) National Convention in Washington, DC on March 16th-20th on behalf of NJCFSA to educate medical students, premedical students, residents & doctors about CFS. She is looking for any volunteers who live in the area who may want to come and help her man the table. If you are interested, please email her at Beth_W@ix.netcom.com The convention is from Wednesday to Sunday, but exhibit hall is open only from Wednesday to Saturday. In addition, NJCFSA's medical advisor, Dr James Oleske, will be coming one day (probably Saturday) to help educate the future doctors about CFS, and as he is world reknowned for his pediatric AIDS work, that should have an even greater impact than just speaking to a patient with CFS.