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Teenagers with Chronic Illnesses
T.W.C.I.

A website for teens and young adults with chronic illnesses

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Doctor Resources
Looking for a doctor? Look at these lists

Here are some great lists of doctor contact information

CFS & FM Good Doctor List

Medical Network

Clinical Research Database

Doctors I have heard about from sick friends:

Juan Villafane, M.D.
Children's Heart Specialists, P.S.C.
Louisville, Kentucky
Pediatric cardiology and electrophysiology

These doctors were posted by Rebecca on the Pediatric Network:

In the US:

David S. Bell, MD
Pediatrician and family practitioner
CFS, OI, and FM clinician-researcher
Lyndonville, NY

Peter C. Rowe, MD
Pediatrician Johns Hopkins University School of Medicine
Baltimore, Maryland
Pediatric NMH, POTS, CFS, FM, and EDS clinician-researcher

Charles Lapp, MD
Hunter-Hopkins Center
Charlotte, North Carolina
Family practitioner interested in adolescent CFS and FM

José L. Muñoz, MD
Pediatric immunology and infectious diseases
Medical Director, Pediatric AIDS Program
Westchester Medical Center, New York
Pediatric CFS clinician-researcher
Co-author on CFS/POTS papers with Julian Stewart

Julian Stewart, MD
Pediatric cardiology and physiology
Director, the Center for Pediatric Hypotension
New York Medical College / Westchester Medical Center, New York
Pediatric CFS, POTS, and NMH clinician-researcher
www.syncope.org

James Oleske, MD
Pediatric allergy, immunology, and infectious diseases
Pediatric HIV/AIDS researcher and clinician with many pediatric CFS patients
New Jersey Medical School / UMDNJ
** He is not taking on any new patients right now as a result of his own health.

Jerome P. Saul, MD
Pediatric cardiology
Medical University of South Carolina (Charleston)
Researches NMH in pediatric CFS

Kevin J. Kelly, MD
Pediatric gastroenterology
Pennsylvania
Experience with pediatric food allergies, chronic intestinal pseudo-obstruction, and CFS

Bryan D. Carter, PhD
University of Louisville School of Medicine
Bingham Child Guidance Center
Louisville, Kentucky
Pediatric health psychology; clinician-researcher interested in CFS

Alan Gurwitt, MD
Newton, MA
Psychiatrist with an interest in adolescent CFS

Lawrence Zemel, MD
Director, Pediatric Rheumatology
Newington Children's Hospital
Newington, Connecticut
University of Connecticut School of Medicine
Pediatric clinician for Lyme and fibromyalgia

Henry Feder, MD
Pediatrician and family practitioner
University of Connecticut School of Medicine
Researcher of pediatric Lyme and fibromyalgia

Michael Goldberg, MD
Pediatrician with a special interest in the overlap between autism and neuroimmune conditions like CFS
Tarzana, California

Blair P. Grubb
Pediatric cardiologist, Medical College of Ohio
Toledo, OH
Has published extensively on pediatric POTS and related conditions

Kathryn E. Boehm, MD
Department of Pediatrics, Medical College of Ohio
Toledo, Ohio
Researcher of neurocardiogenic syncope

Leonard Krilov, MD and Martin Fisher, MD
Co-Directors, CFS Clinic New York University School of Medicine
Dept of Pediatrics, North Shore University Hospital
Manhasset, New York
Research the course and outcome of adolescent CFS

Patrick J. McGrath, PhD
Pediatric Pain Lab
Department of Psychology
Dalhousie University
Halifax, Nova Scotia
Published a GREAT review paper about pediatric FM and CFS and is a leader in pediatric pain management

Lynn M. Rusy, MD
Medical College of Wisconsin
Anesthesia Department
Children's Hospital of Wisconsin
Milwaukee, Wisconsin
Has published about evaluting dizziness and vestibular dysfunction in adolescent FM

Outside the US:

Katherine Rowe, MD
Department of Pediatrics
University of Melbourne, Victoria, Australia
Pediatric CFS clinician-researcher

Elizabeth G. Dowsett, MB ChB, DipBact
Honorary Consultant Microbiologist
Shoeburyness, Essex
Researcher of the impact of pediatric M.E./CFS on education

Alison Fry, MD
University of Oxford
Department of Psychiatry
Park Hospital for Children
Oxford, UK
Has published about sleep abnormalities in pediatric CFS

Martial M. Massin, MD
Division of Pediatric Cardiology
University of Liege
CHR Citadelle, Belgium
Published about a girl with CFS and NMH

Marja Mikkelsson, MD
Rheumatism Foundation Hospital
Pikijärventie
1 18120 Heinola
Finland
Researches pediatric FM prevalence and outcome

If you have doctor suggestions that you'd like to see displayed, please click the 'contact me' link on the left bar to email me.