Email
Buddies
This is a list of information about people who come to my
site. Feel free to email them and connect with them to share your experiences
and talk about your illnesses.
Sorted
by ages (as of 2003 unless otherwise stated)
8-12
| 13-15 | 16-18 | 19+
Name:
Chelsea
Age: 12 (as of 2004)
Email Address: chelly_1992@hotmail.com
Chronic Illnesses: Crohns Disease
Other information: I've had crohns for 4 years. I have just started a
course of accupuncture and chinese medicine. I don't know anyone who shares
my condition, and I would like to talk to someone who understands it properly.
Name:
EJ
Age: 13
Chronic Illnesses: CFS, FM, OI
Email Address: Gnejz@msn.com
Name:
Chris
Age: 13
Chronic Illnesses: Manic Depression and ADHD
Email Address: goodkid_77@yahoo.com
Other information: I just want someone to talk to. you
see, I have no friends, and don't know why, either. My family is always
busy or tired. I have no one to talk to. I stay in my room and cry because
I have no friends and no one to talk to.
Name:
Melissa
Age: 14
Chronic Illnesses: Type 1 Diabetes, Celiac Disease, and
Guttate Psoriasis
Email Address: Cuteascandy90@aol.com
Other Information: "I'm always here to talk and
to give a helping hand."
Name:
Mary
Age: 14 (as of 2004)
Chronic Illnesses: I HAD Ulcerative Colitis, but now
I have a J-Pouch and no colon.
Email Address: Laser_Huntress14@yahoo.com
Other Information: I love Lord of the Rings, I'm fun
and a true blue friend. I don't care if my friends are boys or girls,
I just want someone like me to talk to. I like cats and horses and I LOVE
SCHOOL!!!
Name:
Tess
Age: 14
Chronic Illnesses: CFS & longstanding depression
Email Address: biggestreaderever@hotmail.com
Other information: I'm a fun luving teen that wants to talk.
Name:
Abigail
Age: 14
Chronic Illnesses: ME/CFS and a slight deprestion
Email Address: absangle@hotmail.com
Other Information: I feel I need to know more about my
illness. I don't know anyone with this and it would be good to talk to
some one who understands.
Name:
Suzanne
Age: 14
Chronic Illnesses: POTS, Fibromyalgia
Email Address: Krunchers29@aol.com
Other Information: Within a year, i've been to around....5
or 6 doctors, thats alot to deal with plus being sick! i was diagnosed
with POTS/ Dysautonomia last November, after being told from 3 or 4 doctors
that it was all in my head. *toldja so!* i take meds 4 times a day and
it plainly STINKS to be sick! i've learned alot of life's lessons the
hard way, and now i dont take alot for granted. good things come out of
the bad!
Name:
Samantha
Age: 14
Chronic Illnesses: POTS/NCS
Email Address: soccerfanatic9@aol.com
AIM SN: wildnsizzilnme
Other Information: I love to play soccer but am currently
having a hard time playin. I'd love to get to know some of yall better.
I still go to school full day so I don't really get online that much anymore
to talk just for research but still IM or email me if u wanna talk!!!!
Name:
Sarah
Age: 15
Chronic Illnesses: POTS, CFS, FMS, CFS, JRA
Email Address: Kupianaha26@aol.com
Other Information: I love talking to people with chronic
illnesses who understand what I'm going through
Name:
Lauren
Age: 15
Chronic Illnesses: Chronic Fatigue Immune Deficensy Syndrom,
Orthostatic Hypotension
Email Address: LOTRLegolas1015@aol.com
Other Information: I LOVE Lord of The Rings and Harry
Potter, both the books and the movies. My favorite character in Lord of
The Rings is who else.... Legolas Greenleaf *smiles* My favorite character
in Harry Potter is the evil Lord Voldemort. I love to draw and Role Play.
Name:
Rosa
Age: 15
Chronic Illnesses: CFS
Email Address: missymiss_87@hotmail.com
Other Information: I just want to talk to people in similar conditions
to help us all!!!
Name:
Wren
Age: 15
Chronic Illnesses: FMS, OCD, symptoms of ADHD
Email Address: crimsonfisted@bolt.com
AIM SN: TinkerFoot989
Yahoo SN: chronichilariousity
Website: http://www.geocities.com/chronichilariousity/wrensplace
Name:
Josh
Age: 15
Chronic Illnesses: CFS, NMH, asthma, acid reflux
Email Address: jleary87@comcast.net
Name:
Katie
Age: 15
Chronic Illnesses: Fibromyalgia and Chronic Fatigue Syndrome
Email Address: chiquita_banana41@hotmail.com
Other Information: I'd really like to connect and get
to know on a personal basis other teens with FMS/CFS and related diseases!
Name:
Mindy
Age: 15 (as of 2004)
Chronic Illnesses: So far my doctors can not agree on
what my illness is...I've been told that its FM, stress, hypermobility,
digenitive detericating disc, it's all in my head, and so much more!!
Email Address: Puddentang@aol.com
Other Information: Feel free to e-mail me!! :-)
Name:
Ashli
Age: 15
Chronic Illnesses: NCS, POTS
Email Address: hawaiigirl789@aol.com
Other Information: I love quotes too! I have some posted
on my wall in my room. Some of them are to remind me that I am lucky compared
to some people! I am from Eugene, OR and my family really wants to find
a doctor on the west coast...if anyone knows of a doctor please contact
me!
Name:
Manda
Age: 15
Chronic Illnesses: POTS
Email Address: lilblondie8898@earthlink.net
AIM sn: LilBlondie8898
Name:
Melissa
Age: 15
Chronic Illnesses: POTS and thyroid dysfunction
Email Address: melissa47150@yahoo.com
Other Information: I have been a member of the Dysautonomia
Youth Network of America for two years. I know what it is like to be very
ill and to have family with medical problems, and that it is easier if
you have someone to talk to.
Name:
Melissa
Age: 16
Chronic Illnesses: Believed to have CFS
Email Address: sweetgurl101210@aol.com
Other Information: I'm in the process of being diagnossed
with CFS & my mom & dad have it also. I live in NC & have
been out of school since december.
Name:
Kate
Age: 16 (As of 2004)
Chronic Illnesses: CFS
Email Address: kayte65@aol.com
Name:
Angelica
Age: 16 (As of 2004)
Chronic Illnesses: ME/CFS
Email Address: angelfizz@hotmail.com
Name:
Katie
Age: 16 (as of 2004)
Chronic Illnesses: CFS, Depression (because of CFS),
& possibly FM
Email Address: dorben15@yahoo.com
Other Information: I was just recently diagnosed with
CFS and might have Fibromyalgia. I'd love to talk with other teens who
know what a struggle it is not onlt having a chronic illness, but to try
to be a teenager at same time.
Name:
Edie (Eadz)
Age: 16
Chronic Illnesses: Chronic Fatigue
Email Address: iggy_blue11@hotmail.com
Other Information: I only got diagnosed with CFS about
a month ago but I think I've had it for as long as 5 years. I'd really
like to chat to someone else who knows what I'm going through. Feel free
to e-mail me or add me on msn:) I hope you're all okay.
Name:
Meredith
Age: 16 (as of 2004)
Chronic Illnesses: POTS
Email Address: Mertsie05@aol.com
Name: Alexandria
(Alex)
Age: 17 (as of 2006)
Chronic Illness: fibromyalgia
Email Address: aliswims@msn.com
Name:
Adam
Age: 17 (as of 2005)
Chronic Illnesses: Stroke before birth & a speech
disability called apraxia.
Email Address: cindy.piccolo@verizon.net
Name:
Ashley
Age: 17 (as of 2004)
Email Address: alrhm@dnet.net
Chronic Illnesses: CFS and Hydrocephalus
AIM SN: ALRWesternNC
Yahoo SN: swimgirl162003
Other Information: I've been sick all of my life with
1 thing or another after I had megningitis when I was a baby &I have
what us called a shunt in my head to keep me alive. I used to swim competively
until 2 months ago when I got too sick to compete anymore. I only go to
school a half day every day instead of the whole day.
Name:
Whitney
Age: 17 (as of 2004)
Chronic Illnesses: FMS and CFS
Email Address: babygirl6504@hotmail.com
AIM SN: babygirl91186
Yahoo SN: lilnegrogirl04
Other Information: I was just recently diagnosed with
FMS and I KNOW I have CFS I just need to get a diagnosis. I would LOVE
to talk to ANYONE with ANY kind of chronic illness. It's nice knowing
your not alone, and that there are others out there that have gone through
what you have and can understand how you feel. Feel free to e-mail/IM
me whenever.
Name:
Seppy
Age: 17
Chronic Illnesses: CFS and depression
Email Address: pearson1985@hotmail.com
Other Information: just wanting to chat with people who
know what I am going through. My friends try to understand but they do
not really.
Name:
Sophie
Age: 17
Chronic Illnesses: Chronic Orthostatic Intolerance and
Fibro
Email Address: Sophie_H_2003@hotmail.com
Other Information: I'd love to talk to anyone whose going
through an illness or just wants to vent sometimes so give me an email!:)
Name:
Wren
Age: 17
Chronic Illnesses: CFS, FMS, POTS, anemia
Email Address: Nighthawk3386@yahoo.com
Name:
Jessica
Age: 17
Chronic Illnesses: Crohn's disease
Email Address: Capricorn3112@aol.com
Name:
Chelsea
Age: 17
Chronic Illnesses: POTS, Elhers-Danlos, and Acid Reflux
Email Address: ChaChiRox@aol.com
Name:
Jacqui
Age: 17
Chronic Illnesses: ME and CFS
Email Address: pink_elephants85@hotmail.com
Name:
Christy
Age: 18
Chronic Illnesses: Poly cystic Ovarian syndrome
Email Address: ushergrl777@aol.com
Name:
Nichole
Age: 18
Chronic Illnesses: Well I know I have some sort of autoimmune
disease. They are having trouble pin pointing it. So far I know I have
Celiac Disease, MCTD, CF, FMS, Possible POTS, NMH, Raynauds...a lot of
stuff with a lot of symptoms!
Email Address: Colie200523@aol.com
Other Information: I've always been a very socal person,
and haven't let my disease really afect me until this past year when it
got out of control, and has put me in a wheelchair. I'd love to talk to
anyone and meet new friends.
Name:
Sarah
Age: 18
Chronic Illnesses: NCS
Email Address: SAJohnston@cfl.rr.com
Name:
Katharine
Age: 19
Chronic Illnesses: CFS, Anaemia
Email Address: katharinewener@hotmail.com
Other Information: I've had CFS since I was 7 years old.
Ive spent a year in the hospital when I was 12.
Name:
Gillian
Age: 19 (as of 2006)
Chronic Illnesses: CFS, GERD, slow transit, anemia, IBS
Email Address: gillsimons@yahoo.com
AOL SN:
all4u3673
Name:
Kelly
Age: 19 (As of 2005)
Chronic Illnesses: Lyme Disease and Co-infections
Email Address: Misty1164@aol.com
Name:
Hayley
Age: 19
Chronic Illnesses: POTS
Email Address: fountainhayley@hotmail.com
Name:
Jessi
Age: 19
Chronic Illnesses: asthma, GERD, NCS, bad pancreas, migraines,
and im also G-tube feed for half of my cals.
Email Address: jmducky@earthlink.net
AIM SN: DBabyJ84
Name:
Gillian
Age: 20
Chronic Illnesses: POTS and CFS
Email Address: ahandtoholddoula@yahoo.com
AIM SN: doulamagik
Name:
Melissa Zuardo
Age: 20
Chronic Illnesses: crohn's disease of the stomach and
esophogus, poly cystic overies, endomitriosis, My blood pressure and heart
rate increases when I stand up or change positions, thyroid problems.
Email Address: gmzuardo@aol.com
Other Information: I have been sick since I'm 6 years
old. I still can't find a decent doctor.
Name:
Min
Age: 21 (as of 2004)
Chronic Illnesses: cerebal palsy and depression
Email Address: crazywheels2021@hotmail.com
AIM SN: QTPieMin21
Other Information: i lost my dad when i was 16 i have
a boyfriend who has muscular distophy
Name:
Rebecca
Website: http://www.pediatricnetwork.org/
Email Address: rebecca@pediatricnetwork.org
Other Information: She is the co-creator of the Pediatric
Network for CFS, NMH, POTS, OI, & related conditions. She would only
like to be contacted if any teenagers would like to do some volunteering.
Name:
Emily
Chronic Illnesses: Vocal Chord Dysfunction (VCD), Gerd
and other motility problems, Moderate/severe asthma
Email Address: jamacinmecrazy@hotmail.com
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